Monday, October 23, 2006

okay, too long without a good update.

So Saul ate some rice cereal this weekend. YAY. Tarzan says rice cereal is yummy.

Today we had a meeting at the Stanford, Lucille Packard Children's Hospital for Occupational Therapy with an eating specialist.

This is just so difficult to explain.

Just before we went in for our appointment we met a lady whose name I missed, but her son Arul is 2. They were finishing their appointment. She has somewhat the same issue, but for different reason, Arul was preemie. And won't eat.

We chatted for a bit, and she told us "it is so difficult to explain to anyone who has not had this problem. All my family and friends try to give advice, but really, no one understands this"

And she is right. Our son will eat, only not enough. How can you explain "baby won't eat?" it is not about love or mothering or fathering, or what food it is. He won't eat.

She worked and is working very hard to keep her son off the G-tube. This is our goal also.

Then we got in to our appointment, and Ms. Thorn, our therapist, was wonderful, She listened to some of his history, and had this calm smile.

Just like my pal Joe, who can listen to a toyota motor for 3 minutes and tell you what all is wrong and why, she too, had heard and seen it, and knew the issues. Not through brilliance, through experience.

WE ARE NOT ALONE! Just knowing that is amazing.

We discussed how he eats, and why he may not, what factors could contribute, and how we may be able to get him to eat more.

She has a recommendation for another pediatric GI specialist, and will try to get us in to see her quickly.

THEN, she held up a pinwheel Simple, a Pinwheel. Sparkly.

Tarzan locked onto it, and started sucking from the bottle. No, he did not finish all 90ml, but he did drink more, .... after we thought he was done.

the distraction helped.

I read about a word to describe someone who is excited by, and craves new things. Unfortunately, I cannot find the reference. But there is this need for new. Not new toys, but NEW. the excitement of starting a new freindship. The thrill of finding a new place to eat.... etc..

but the problem is, eventually, the new wears off, and the pinwheel is no longer new.

So we still must find a long term solution, and will be working on that.

If nothing else, it was wonderful to hear that we are not alone. Cause it is impossible to explain to people "my baby won't eat"


well, that's what happened for us today.


I hope no one declares me an enemy combattant.

getting out?

Habeas Corpus Dead! (From Wikipedia)

Top legal experts and scholars are nearly unanimous that the Military Commissions Act does affect American citizens.

Yale Law Professor Bruce Ackerman states in the L.A. Times , "The compromise legislation....authorizes the president to seize American citizens as enemy combatants, even if they have never left the United States. And once thrown into military prison, they cannot expect a trial by their peers or any other of the normal protections of the Bill of Rights."

Similarly, law Professor Marty Lederman explains : "this [subsection (ii) of the definition of 'unlawful enemy combatant'] means that if the Pentagon says you're an unlawful enemy combatant -- using whatever criteria they wish -- then as far as Congress, and U.S. law, is concerned, you are one, whether or not you have had any connection to 'hostilities' at all."

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